It has occurred to me that I haven’t done a blog post for a long time and when a friend noted it in my Christmas card, expressing concerns as to whether everything was OK I thought that maybe I ought to, so here I am.
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First up. Happy New Year everyone … belatedly, I admit.
Second, just to confirm, yes, I’m still alive.
There is a lot going on and I think part of the problem with the blog is that when I come to talk about everything that’s happening … I just don’t want to give that shit any more air time. I’m exhausted, I’m spent, I’m done. I pull up the page with the best of intentions and then, suddenly, when I think about the events I have to describe, everything is grey and dull. The same thing is happening with my thank you letters and my tax return so I need to get my finger out from up my arse. On the upside, I have successfully opened a new savings account which pays a higher, and fixed, rate of interest. So there’s that …
The other thing that has curtailed the blog is that I was increasingly discovering that I only had time to write a blog post and market my books every week and so I dropped the blog in favour of using that time to inch the WIP forward, one tiny, tiny increment at a time. Yes, as usual, glaciers are leaving me standing and I am eating the dust of continental drift, so slow is my progress. On the up side. It is happening. Which is definitely a bit of a thing, woot. I’m having slight difficulty with the timeline but I think that will improve over the next couple of months … once I’ve finished my bloody bastard tax return, of course.
So there we are … what better time to jump back into my increasingly sporadic blog habit than now, with a look back over the year in a post peppered with pictures from the many and varied holidays I went on, which I almost completely fail to mention? Yes. I think it would. On we go.
Where have I been?
You may remember that last Christmas was, to put it politely, a fucking nightmare. I came out of three nights at Mum’s short of breath, sleep deprived—yet still unable to sleep when I got into bed—and with heart palpitations, which was fun. I was also fourteen and a half stones, which is well over 90 kilos and I ached pretty much everywhere.
I wore an ecg for a few days and was pronounced fit but menopausal. Yes the menopause also gives you palpitations as well as brain fog. It’s the gift that just keeps on giving.
In the New Year, I managed to get the tax return done early on in January and then do some writing January as well as February, March and April. Those three months tend to be my window of opportunity and then, by the time the April holidays are finished and we are into May and the Summer Term comes, it’s birthdays and shit, and summer bar-b-queues so peopling edges writing out of the frame until I end up finally giving up and shelving everything over the summer holidays. It tends to stay shelved until either the next year or until I do Nano in the November (more on that later). Meanwhile back to early 2022.
I had been concentrating on rehab for my replaced knee and I was aware that I had pretty much sorted it but that ideally, if I could find a gym to attend for a year, I could push it that little bit further. Strangely, an ad popped up for a local gym on my Facebook feed, but I was browsing a local community group at the time and thought it was just a post so I filled in the form and they rang me back by return. I was about to go skiing so I booked to join up on 30th April and do a try out over the month of May.
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Things with Mum were tough, we were still coming out of COVID in that everything took twice as much admin conducted through call centres where management had fired half their staff and weren’t bringing them back any time soon. Worse, I still hadn’t really managed to get back on the dementia care horse after having lock down off and lovely easy runs down to Sussex in the intervening months. It’s all very well but running another house and another person’s life for seven years is actually pretty fucking tiring. I was so weary. I was done. I still am.
There are always points with dementia care when you want to give up and it feels like being dragged kicking, screaming and protesting to your doom. Oh no! No life for you this will take ALL your spoons FOREVER. Into the valley of death we go, where the gas will sit on our lungs and stifle the oxygen out of everything. Mum was getting worse, my heart was filling up, writing was getting harder and harder and I needed an easy win. Since I was getting less and less writing done in the time I had, using that time for something else, said easy win being a case in point, seemed like a plan.
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With the gym initiation booked for 30th April, we went skiing, I did more writing, but not as much as I’d have liked because I was sick as a dog, discovering, on my return home, that I had COVID.
Joy. The Pandemic. Another gift that keeps on giving.
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Yes those are my knees, sitting in a fighter jet. 2022 wasn’t all bad.
It was also Easter and by some unfortunate coincidence, we managed to arrive in pretty much every town we stopped in for the night of the week on which all the restaurants were closed. Not that I felt that well—but the McOther’s threw it off in a trice obvs. I felt post-feverish for about six weeks afterwards.
However, on the up side, when I got back, I was 14 stones 2 lbs—which is about 90kg and about 5lbs less than I had weighed before I left
The gym wanted me to do a diet play calorie pontoon every day by tracking what I eat. I am pathologically averse to dieting in any form but I decided that I could hack it for a month to see if it worked because otherwise, I wasn’t giving the regimen a chance. Counting calories is easier than you’d think because there are apps that help you.
However, it would be even more easy if ONE SINGLE BASTARD CALORIE COUNTING APP HAD THE COURTESY TO USE THE UNITS, MEASURES AND RETAILERS OF THE COUNTRIES IN WHICH THEY ARE SOLD. Can you imagine the uproar if the American site for MyfitnessPal was all in Metric weights and measures?
So why impose their stupid incomprehensible mentalist random bastard system of cups on us poor sods trying to use their app in Britain. How much is a cup? It varies, which is fine until the recipe suddenly demands you measure out half a pint of fluid, or do a fluid cup which is different to a solids cup, or an Australian cup which is not the same as an American cup.
Lovely though the Americans are, it never ceases to amaze me how absolutely batshit crazy they can be and how officiously difficult they like to make life for themselves … they are absolutely germanic about rules, but without the flawless logic. That’s three cups of rice, half a lb of butter, a quart of milk, what the fuck is a quart? and then suddenly, 25 grams of sugar. AAAAAARGH! (Throws recipe book across room!) MAKE UP YOUR FUCKING MIND!
Oops, sorry. Slight rant there. Where was I? Ah yes.
In the end I used the gym’s own app which was bad but gave a bit more of a nod to the UK existing. The only saving grace is that once I’d done it for a month, I had looked up all the things we usually eat, broken down the constituents I was required to track in metric and added them as my own foods. Some of the others also loaded up correctly with the app’s barcode reader, except Waitrose frozen peas which for some reason is a can of Jolly Green Giant sweetcorn from Kroger’s. We don’t even have Kroger’s in chuffing England.
Never mind, once I started eating as much protein a day as they suggested, I was absolutely stuffed well before I hit my calorie limit. At the end of the month, I’d lost weight and was doing my belt up a notch tighter. Despite the food tracking initially doing my head in. The idea of getting a bit fitter looked like it might work as Easy Win for 2022.
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Trying to take an interesting view of the avenue de champagne in Epernay.
On the down side. The potential new gym cost as much, per month, as my last gym per year, even so, the easy win was clearly go! I signed up. I’m now 11 stones 12lbs or about 76 kg. I have not weighed as little as this for 25 years. My waist is 5” smaller than it was this time last year and I’m wearing clothes I haven’t been able to get into since 2005. The heart palpitations still pop up occasionally but for the most part, they’ve gone.
There were holidays too. The picture is from our summer holiday jaunting round Europe. First stop, Epernay …
The Mum Stuff.
2021 was a bad run financially for Mum. Carer after carer got sick and couldn’t work, they had been with Mum since 2012 and I felt it only right that I paid them sick pay. It wasn’t as much as they usually earned per week but it was something. But it did hammer us a bit. As a result, by the time we hit 2022 my Mum’s financial adviser got in touch with me and explained that he could no longer manage her portfolio through stocks and shares because there wasn’t enough of it. Anyway … Ukrain. Thanks Putin you absolute melt. So I agreed we should to sell them all.
Mum had enough money for one more year at the end of which she either needed to die in a timely fashion (this doesn’t happen with dementia) or we would have to put her into a home. The thing is, even if she’s living in her house, since it’s just her, she has to sell it and use the proceeds to pay for her care. This rule is the absolute zenith of bastardy but that’s the UK for you, horrid, small-minded pissy little island that we are.
There is healthcare insurance here in the UK but it’s not as plentiful or comprehensive as the US system. On the other hand, the NHS doesn’t treat dementia. It’s very expensive and as we all know, the NHS has been a) gradually run down and b) split into hundreds of private companies, each taking responsibility for one aspect of care the net result of which is that nobody seems to be accountable and a lot of money, time and effort is wasted.
Basically, the NHS palms dementia care off onto social services run by local authorities but they lack the funding to treat it properly either, although Social Services in Sussex were brilliant with Dad, truly brilliant, the parameters within which they worked still entailed taking all Dad’s pension to pay for this nursing home fees. Luckily Mum had some savings to live on, otherwise I’m not sure what we’d have done.
It is what it is.
So I’m sitting here, having spent all but £30k of my parents’ entire life savings, £750,000–yes that’s three quarter of a million quid—on care fees that they believed, for their entire lives, that they would get for free. It will be every last fucking penny and the rest before we are done. For most of the year I drifted, rudderless, towards the waterfall of disaster; glazed eyes staring into the abyss like a deer caught in the headlights. Immobilised by panic and horror, wishing my Mum dead so I didn’t have to break her heart and worsen her illness by taking her away from everything that was familiar; in this case, her home for 50 years.
Then I finally got my shit together and started negotiating an endowment mortgage. I wasn’t sure we’d go through with it but the care team reckoned that if we could keep her at home for another 18 months, she might not know where she was after that and we could move her into a home without it being cruel.
My brother had serious misgivings about keeping her where she was and wanted to whisk her off to a home near him. I think his social services are better than the ones here in Suffolk—indeed Suffolk mental health services are notorious, I think they were second from bottom in the round Britain league tables last time I looked. I had misgivings about moving her anywhere until she was ready. I was also petrified that I’d fall out with my brother—who I have always got on very well with—over this.
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It was hot … this is Italy
Finally, round about August the mortgage was ready to sign, but of course, the interest rate was rising just about weekly by this point—thanks bampot Putin. I was aware that we were going to lose a lot of the asset we were liquidating. We went on holiday and when we came home, my knee, the one that’s supposed to be fine, gave out. I suspect it’s back of the kneecap. I dunno. It might settle with a cortisone injection. I may give that a go. If it doesn’t, I guess I’ll have to see a surgeon. I think the next stage from the injection would be a MRI or whatever it is they do instead if you already have a knee full of metal the other side, and then an arthroscopy.
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This is one of the churches in Alba, Italy. It was really rather lovely, as you can see
The knee was the final straw. I was well fucked off. I hadn’t written anything since March because my heart and brain were too full of Mum stuff. My book sales were tanking—in fact my whole literary career, such as it is, was dying on its arse even more spectacularly than it usually is. I remember going up the hill one day and quietly popping into church, lighting a candle and having very strong words with the Almighty about what an utter bastard he was being to me. I pointed out that seven years having to play to a perfect storm of everything at which I am shit is a sod of a long time and that I’d fucking had it. I told it that caring for Mum and Dad had taken everything from me; I’ve no job, no prospects and pea-souper brain fog. I explained, forcefully, that there was nothing left in my life but grey and also it’s hard, when you and your sibling stand to inherit about a million quid each in assets, to inherit nothing due sheer, shite luck.
It’s not like Mum and Dad spent their money, it was taken from them by a government that thinks it’s a really good idea to take a fucking horrible illness that wrecks lives and turn it from a horrific experience into something that will grind everyone involved to nothing. I was so fucking angry. I’m still fucking angry about that one.
Maybe God listened. I dunno.
A few days later bruv told me he didn’t want to do the mortgage but that he’d like to fund Mum’s care ourselves. At this point, I passed on McOther’s suggestion that we mortgage her house to us and that we should bethe lenders. If we did it all above board then then any of the asset we lost in interest would be paid to us anyway, as the lenders. We would be creditors, not family, so what we’d lent would not be included in death duties, which, if we’d just put money in and kept the house un-mortgaged, it would be.
He agreed. Then within days, Bruv was talking about it to one of Mum’s neighbours and they put me in touch with someone who was happy to buy the house and allow Mum to live there until she died. That didn’t work out, there are death duties implications around that, too, which make it tricky to sell the property for less than the market rate. But those two rays of hope were like sunlight in a darkened world where all was monotone and ash.
We have now mortgaged the house to ourselves, all done above board through a legal firm. I left the form at Mum’s for Bruv to sign after I visited, pre-Christmas. He’s signed it but needless to say there’s some giant slew of signatures from me on the end that need witnessed by someone who isn’t my husband or son. So I’ll take it to Church with me tomorrow and get some other poor sod to sign it, at which point, McOther takes it to the solicitors to date and register it.
I think we can manage 18 months between us. Then I think it will be time for Mum to go into a home anyway. Ideally the money will see her out but I doubt life will do anything that kind. It will be really tough to move her, when the time comes, but I hope she’ll be so away with the fairies by that time that she won’t really realise.
Visiting Mum is getting harder and harder because we are losing so much of her, but that permanent sense of dread in the pit of my stomach about her finances has finally gone after seven months. My resting pulse has dropped a few points, accordingly!
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A morning glory (NO! Not that type) in Portugal
It was October by this time and after a nice holiday in Portugal, crap weather but lovely food although I caught some grim bug on the plane out which was a bit of a pisser. Then Mum broke her ankle and ended up in hospital. That was quite a lot more of a pisser but I did see my brother and his family which was lovely and got McMini, who is a hulking great teenager now, together with his similarly aged cousins. And we sorted that out and got her home, as you know from previous posts.
Other ‘Easy wins…’
All the same, after that lot I decided it was time to attempt another easy possible win; Nanowrimo.
Briefly, in case you don’t know, Nanowrimo is an initiative where you attempt to write 50,000 words over the month of November. The idea is that this is the length of a novel and you get to write yourself the first draft of your next book over that month. My novels tend to be more like 80-100k so I haven’t ever written a whole novel … although I did manage to finish one once.
For Nano 2022 I had a list of ‘scenes we’d like to see…’ for the book I’m currently writing so I thought I’d give it a go. Obviously, I can’t do anything on Wednesdays, so I always start a few days down on everyone else, the way they all fell this time; five days down. It’s a hiding to nothing a lot of the time, Nano, but it does usually result in my writing 35k. This year, amazingly, I managed the full 50.
Have I finished the story? Have I bollocks? But I am a lot clearer where it goes now which is a bonus.
Christmas was also easier. We were due to visit my lovely in laws this year and so we visited Mum earlier. She has a machine to help her stand up and the carers showed me how to use it. Mum is doing really well with her rehab and can stand on her own now, although I think the machine still gets used, too. Back then, though, it was machine only. She was way more with it, because she no longer had the UTI and chest infection they discovered when she was in hospital with her broken ankle. I couldn’t believe the huge difference that made. As a result, we had folks coming in to help her to bed and help her get up, more to keep continuity than anything.
In normal times we have a carer in at night but this time I did it. Mum was fine, she woke up early one morning (I didn’t) and McOther told her all was well, and to not worry and relax because the carer would be in soon, which she was. I even got a couple of hours out on the lawn metal detecting and found some reasonably interesting things which, I realise, I have not looked at since. Hmm… I know what I’m going to be doing when I finish writing this then.
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The massive carboy, from different angles, with cat for size reference.
Another highlight of the stay with my in-laws was that we managed to make it to a small antiques shop up there that we always enjoy dropping into. I spent £50 (yeh, I know) on a massive jug like they use to put in the windows of chemists stores. I think the correct word is a carboy. I think it’s probably Regency to mid-Victorian but it might be later. It’s massive, and a bit mad but also awesome! I tried to photograph it just now, by draping the tablecloth from my bookstall over some things to make a neutral background. This interesting new soft thing had been on the carpet for approximately 30 seconds before McCat decided it would be a good place to sit and give his arse a really good bath. He gives you a sense of size though. It’s about two ft tall.
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Brighton got drubbed but not as badly as the score looked.
By the 28th December, we’d done all the miles and were able to hunker down here. I spent New Year’s Eve sitting on the sofa watching telly with the McOthers wearing my pyjamas and the lovely fluffy new towelling bathrobe Mum and Dad in-law gave me, which made me feel as if I was in a posh hotel!
Since then things have been relaxed, the only blot being that I’ve run out of the magnesium pills I take. I had not realised what a significant difference they make to the brain fog. Oh lordy me my brain is mush right now. I have a new supply arriving on Monday though. So that’s grand.
Summary of the year then?
Hmm … interesting times. Lows and highs I guess. I’m proud of what bruv and I have achieved and Mum is doing really well with her ankle rehab, which helps. And although she’s way more nuts in some respects, she’s less nuts in others.
One of the noticeable things about dealing with the dementia this time is that I am leaning more and more heavily on escaping into my writing. The last time, with Dad, Mum and I talked. I don’t know how much I helped her or how much she couldn’t say but I just attempted to lighten the load and help her carry it, even if that just meant ringing her up with a shit joke or making her laugh.
This time, no assist of that type is required so instead, I am pretending it’s not happening trying not to concentrate the whole dementia mess unless I absolutely have to, and I’m sneaking off to K’Barth instead. Only for short periods of time but quite a lot more in my head. Yep. More ‘scenes we’d like to see’ there. I also have some non-fiction and other stuff to write, more on that story next time as I intend to do a look back over the year with my writing, too. It probably won’t be next week because I have a newsletter to write and the dreaded thank you letters and a fuck of a lot of peopling to do next week—plus McOther is off to Oxford on a work jolly so I have to squeeze the Mum visit in on Tuesday. But who knows, it might be. Whenever it is, I’ll try and make it a bit shorter than this one.
In truth I’d be lying if I said I’d enjoyed 2022. A lot of it was shite, except for the bit at the end and, for the most part, I’ll be glad to see the back of it. But I’d also be lying if I said it had all been awful. There was light as well as shade.
Also, another upside, I feel curiously proud to have got through it. Pats on the backs all round, I reckon. With the McOther’s and Bruv’s help we’ve sorted out epic amounts of godawful crap. That has to be a win, right?
Happy New Year lovely blog followers … Here’s hoping 2023 is a bit fucking kinder to all of us.
On a vaguely book related note …
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If you have the remotest interest in any of my books, I have a page on my site where I list all the stuff that’s reduced or free so you can try it out and see if you like it. If you think that sounds interesting (oh yes you DO think it sounds interesting) then click on this link: https://www.hamgee.co.uk/cmot3